Get your seatbelt on. Jenna is a vibrant mama to Josh. She is a badass with very little filter, especially when she talks about her life’s #1 passion: fighting for her son's rights and well-being. Jenna has been through so much with her son’s disorder, a rare neuro-genetic disorder that occurs in one in 15,000 live births. According to the Angelman Syndrome Foundation, “symptoms and characteristics with other disorders including autism, cerebral palsy and Prader-Willi syndrome. Due to the common characteristics, misdiagnosis occurs often.”
Another common symptom, which we talk about in-depth, are seizures. They suck, they’re scary, and they are a part of Jenna’s reality as Josh’s mama. We discuss an alternative form of medication that has changed everything for Josh and his seizures: CBD, a chemical found in marijuana. There’s lots to unpack in this episode.
Josh is an angel and so is his mom for sharing their story.
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DISCLAIMER
This podcast has mature language and content. Moms ears only — don’t have this one on with your kids in the room. These are our opinions and experiences as moms, take what you like, or leave it. Don’t be thinking we’re telling you what to do. Seek professionals, do your research, and call the experts for help.
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Jenna Leann + Angelman syndrome